THE guardian of a “precious little boy” will help celebrate his fourth birthday with a fundraiser this weekend.

The event at Butter’s Cafe, in High Street, on Sunday is in aid of Isaac Blake, who is being cared for by Maxine Rothchester.

The Hope for Isaac fundraiser has been set up to raise money for the boy who suffers from a condition so rare there are reported to be only 25 cases of it worldwide.

He suffers from AllanHerndon-Dudley syndrome which, exclusive to males, is a rare disorder of brain development that causes moderate to severe intellectual disability and problems with movement.

Earlier this year one of Isaac’s neurologists gave Maxine the devastating news that he has one year left to live.

Since then, she has hoped to raise £10,000 to improve his quality of life. So, friends of Maxine, Katie Jones and Annabel Pope, organised the event on Sunday to help raise money and awareness.

And Maxine, who rarely leaves her home as she has devoted her life to taking care of the toddler, will be bringing Isaac to the event.

She said: “I think it’s important people meet Isaac and see what we’re on about and I think it’ll help people to realise because he’s just a precious little boy that needs help.”

The event will include an array of activities, including a raffle, charity auction and face painting.

Host Jake Ward, who will also be singing at the event, said: “I’m very humbled to have been asked to help out on Sunday.

“I’ve known one of the organisers, Katie Jones, for years through her supporting me with my work, but Sunday is all about Isaac, as soon as I was asked to help I thought it was the right thing to do, if we can raise lots of money on Sunday for Isaac and his quality of life then we, as a town are doing the right thing.”

After the news that Isaac has one year to live, Maxine was referred to the Dove Clinic in Winchester, which treats chronic illnesses.

But even a half-hour initial consultation with the Winchester clinic costs £280.

Her hope is for Isaac to be treated with cannabis oil, which she has heard has helped treat epilepsy sufferers.

Currently the medication is not licensed for prescription in the UK due to its narcotic version, and companies are still seeking the potential for medical marijuana in the UK market.

His condition has deteriorated to the point that Isaac has medication pumped into him 24/7 to try and prevent seizures which cause respiratory arrests.

But Maxine says that he will have to come off this soon. She added: “I love him so much it hurts. I don’t want my little boy to die.”

Stuart Blake owner of Butter’s Cafe, said : “We wanted to support local people if we can.

“If we can help in anyway possible of course we would help, we hope people will come along as it’s to help someone’s child - any parent would hope others would help.”

To donate to the cause, visit