A pharmacist has offered his grounds to host a music event to raise funds and awareness for a charity that supports families affected by mitochondrial disease.
Sultan 'Sid' Dajani has volunteered to host Music at the Manor on his grounds in aid of the Abel Foundation.
Mr Dajani is a friend of Tony and Claire Noakes, the founders of the foundation, and their son Abel who suffers from the disease.
The fundraiser aims to support families affected by the rare, life-limiting genetic condition that "robs the body’s cells of energy".
READ MORE: PHOTOS: Masked ball raises more than £3,500 for good cause
"Understandably, at university, I was taught ‘mito’ is a death sentence, it causes miscarriages and children do not survive.
"That is why I consider Abel to be a real-life miracle and inspiration."
Abel, who the foundation is named after, is the son of the charity's founders and is "defying science" by living with the disease.
Mr Dajani explained how the charity, led by Abel's parents, is pioneering in its support for mito-families worldwide.
He said: "Not only is he defying science but because little is known, he and his parents, Tony and Claire, are pioneers in the management of symptoms and improving energy production through medications, vitamins, and specialised diets.
"They provide a beacon of hope and support to mito-families – worldwide."
SEE MORE: Elton John tribute act to perform at charity festival in Andover
This year, the foundation is inviting the community to stand with them at their fundraising event, Music at the Manor.
The event is scheduled for Saturday, July 12, between 2pm and 10pm at Andover Manor.
The event will host live performances, food vendors, a bar and a festival atmosphere, all in support of families affected by the disease.
The foundation is now calling on local businesses and individuals to get involved by sponsoring the event or buying tickets.
Tickets are £30 per person.
Mr Dajani's daughter, DeeDee, who is only six weeks older than Abel, chose to support the Abel Foundation.
He said: "Please join us in supporting Abel, his foundation, and all those who look after him."
Tickets are on sale on the Abel Foundation website, and sponsorship enquiries can be directed to secretary@theabelfoundation.org.uk.
Share